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Rank: Advanced Member  Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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glad you got it off your chest bitlongwindedmouse ;) it sounds a maddening frustrating situation to be in. i'm pleased for you though that the wasted work is documented as a priority action, no one can challenge you on having wasted time can they? it sounds dead inefficient of them in implementing the wrong system. what a shame you got caught up in it. good luck on tuesday, xfx
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi there,
It's good to vent from time to time ... and what better place than here!
I think it's so unfortunate that you feel you need to find another job especially seeing as you enjoy your current position. I think your situation is indicitive of most employers and most RA sufferers still in work. I gave up work last year and even though I had the most wonderful and supportive boss and colleagues, I don't think they ever really understood what my "problem" was. Unfortunately, as my Rheummy once pointed out, when we feel our worst, we look our best. And, unless you have some VERY visible outward sign of disability, no-one realises the extent of the illness. And of course fatigue, a massive contributor, has no outward signs at all!
A large organisation such as the one you work for should have a far more sensitive and appropriate approach to employees with longterm illness that should be communicated through all channels of management. Would there be any value in you meeting with an HR representative to detail your needs and how your job affects you?
I found work and its stresses, including childcare, was a huge factor in the number of flareups I was having as well as the quality of life after I got home. Don't worry about taking a drop in pay having an effect on your daughter. If you can come home in the evening feeling less stressed, she'll be benefitting all they way!
Loads of luck for Tuesday! Knock 'em dead!!
Joanna
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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Just wanted to wish you well for Tuesday!!!! It is good to let off steam, makes us feel better : )
Deb x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Good luck for Tuesday Lizzie!
Sorry you are feeling down you don't deserve to be treated badly.
Not long now till Eleanor's leaving "do", that will cheer you up!
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Lizzie,
I have come to learn that although we work in a caring profession we are very bad at meeting and understanding the needs of employees with disability related work issues. Managers maybe sympathetic, and so far mine have been great, but I'm well aware that there will always be the targets and outcomes that will have to be met when I return. This seems to have become more of a priority than meeting users needs, and building up a trusting therapeutic relationships with users seems to have gone out of the window. Of course meeting targets is the priority for senior mangers otherwise they then would get it in the neck, so where support was once first offered to employee with needs, it then becomes a lower priority for the organisation. I think they just wait for people to give up or move on before making real changes that make a difference.
Moving to another job might be the answer, but are you sure it is not going to be more of the same? I strongly believe that the grass is not always greener on the other side, but hey, a change is as good as a rest, and you have mentioned that the new/old job is nearer to home. But why should you be forced into this position? You could always take out another grievance as they have failed to meet your support needs as an employee with a disability, you can also do this even after you have left ( is moving boxes and and assembling office furniture in your job description, to me this sounds like a breach of health and safety issues?).
Love,
Barbara
XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hi everyone on this post and on the whole forum!
Just want to say thank you for everything - for listening, posting, reading and being there for me! xxxxx
I have just got back from the most worth while meeting which i was convinced would end up with me feeling miserable and down hearted - and it didnt! The meeting was work related (budgety stuff) not personal but the RA stuff definitely fits in there somewhere and i managed to squeeze it in at the end! I had arranged to meet my line manager half an hour before so I was feeling well prepared and ready for action for the meeting with the bigger bods...
ANYway, the meeting went very well ~ I was praised for good work and we agreed plans where needed and all went very well ....then as we were almost closing I mentioned the effect managing with RA has and how this is hidden on this current budget as my support needs are not always adhered to - basically I have bent over backwards working less enhanced hours which i dont mind too much (...means i see my girls more! :) but this has proven difficult for me when too many early mornings in a row or suchlike.......
This fact has now been officially recognised as needing to be built into the budget and we will discuss much further at the next meeting so it looks extremely likely that next year I will have more support in this area when needed and may actually be crucial to me staying put.......
My line manager has asked me to review my work place support plan (...which I will find somewhere on the back burner...:) and we will meet in 2 weeks after my annual leave so i have just driven all the way home with a big grin on my face - didnt need any tissues after all! :)
Anyway i am absolutely CONVINCED it's all done to you lot for keeping me upbeat and assertive - i don't think it would have worked the same without you - in fact im sure of it because you were ALL there in the back of my mind spurring me on!!
Thank you! Lots of love Liz xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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I'm so pleased it went well for you. I haven't been typing much as wrist and hands are playing up but could understand the turmoil you are in as I have been in a very similar situation for the last 2 years and am eventually seeking a move. I'm so glad you took the opportunity to speak out and hope it makes life easier for you. Are you still going for the interview though?
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 690
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Pleased to hear your good news and long may it reign!  Nothing wrong with being assertive it just a shame that we have to struggle for our rights, we shouldn't have to. Love, Barbara XXXXXX
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Well done Lizzie!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Liz, hey!!! thats brilliant!!! sounds like an excellent meeting, budgety or not!! will you still have the interview now? sorry all questions!!! so pleased for you, if only all employers would do the same, many people could continue to work. Wishing you the best for which ever you decide to do x  BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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I am so pleased for you!!!!!!
Deb x
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Rank: Advanced Member Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Well done, Liz! Glad it went well and here's hoping that your needs at work can be fully met SOON!
Joanna
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Rank: Advanced Member Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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ah good news, how nice for you lizzie, xfx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Dear Liz,
I read the first post earlier and then had to go and make lunch and negotiate! I have now read the latest post and I would like to say WELL DONE for being so assertive and professional.
I am sure you're a marvel at your job and that they will accomodate you and the RA-needs any way they can.
My prayers and friendship are always yours, I'm afraid I am not very experienced in the world of work, especially dealing with RA in a work place as I was immensely blessed and left work as soon as I was expecting Ben!
Much love to you, and I hope you have your cabbage leaves ready for the big night out....
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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So happy for you Liz Sophie x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 872
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Think i will go with the current flow and stay put but i will need to let them know, going to talk to hubby in a while and then thinking i will ring them tomorrow to withdraw application....
What really helped me decide, (...apart from the fact i DO love my job) is we currently manage to have enough money left over for occassional extra special treats but a change of job means this could change.... so i figured if i stay put i would definitely be able to get to the annual shenanigans which sounds a good enough reason to me! lots of love ~ Liz xxxxx
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